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FAQs

The Scleroderma Foundation of Greater Washington DC, founded in June of 1991, is dedicated to serving the scleroderma community and driving progress towards a cure. We are fortunate to have scleroderma research institutes in the Washington, DC, Virginia, and Maryland areas, and our foundation is committed to supporting both researchers and patients alike. What began as a grassroots effort around one family’s dining table has blossomed into a dynamic organization with a multi-state presence and growing national influence. Our team is passionately committed to our mission of empowering individuals living with scleroderma to lead better lives through programs dedicated to support, education, and research. Together, we can empower individuals, educate healthcare professionals, and support groundbreaking research efforts. Join us in our commitment to making a meaningful impact and transforming the future for those living with scleroderma.

Our Vision

Is for all scleroderma patients to receive an accurate and timely diagnosis, and access to care and support for those who require it, until we find a cure to end scleroderma.

Pillars of Our Mission

SUPPORT: Inspiring our community through support services and resources for patients including local community and with other foundations’ peer led support groups.

EDUCATION: For medical professionals to assist and properly diagnose scleroderma early, and assist patients to help them cope and thrive while living with scleroderma.

RESEARCH: Help fund global research projects that will lead the way to finding a cure for scleroderma.

Our Mission

We EMPOWER the scleroderma community to live BETTER lives through programs dedicated to SUPPORT, EDUCATION, and RESEARCH.

Our Partners & Affiliations

We commit to partnering and affiliating with organizations who share our mission of improving quality of life for patients with scleroderma, for RESEARCH to find a cure for scleroderma and EDUCATION, including outreach to the medical community to better understand and properly diagnose scleroderma. Such partnerships will support our mission and provide new opportunities for growth.
Although we are no longer associated with the National Scleroderma Foundation, we, as the Scleroderma Foundation of Greater Washington, DC are committed more than ever to fight against this disease.

Why should I donate to the Scleroderma Foundation of Greater Washington, DC?

We are very grateful to our donors. Your generous donation enables us to support people living with scleroderma. The Scleroderma Foundation is fortunate to have research institutes in the Washington, DC, Virginia and Maryland areas. As a foundation, our goal is to support researchers and the patients. Your generous donations will help us meet those goals.

Will the Foundation continue to do advocacy?

We are steadfast in our commitment to advocacy, empowering individuals living with scleroderma through self-advocacy education and actively lobbying for legislation addressing scleroderma-specific, as well as rare and chronic disease, concerns on Capitol Hill. If you are interested in joining our advocacy efforts, please email info@sclerodermadmv.org.

How can I help or volunteer with the foundation?

We invite passionate individuals to join us in growing the foundation by volunteering their time and expertise, serving as dedicated board members, and partnering with us as business allies or donors. Contact us at info@sclerodermadmv.org to learn more about how you can make a meaningful difference in the scleroderma community.

THANK YOU FOR YOUR CONTINUED SUPPORT!

Your Donation is Tax Deductible and Greatly Appreciated!