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Videos

Thank you to the Scleroderma Foundation of California for the creation of these videos and allowing us to share them with our DMV community.

Scleroderma Overviews, Lab Tests, Symptoms and Disease Specifics

Renal Crisis in Scleroderma-2022 
Dr. Philip Clements

(Scleroderma Overview) What Your Rheumatologist Should’ve Told You At Your 1st And 2nd Visit – 2016 
Dr. Philip Clements

Gastrointestinal Disease in Scleroderma-2018  
Dr. Suzanne Kafaja

Overview in Scleroderma- 2018 
Dr. Brian Pedersen

Understanding ANA and Antibody Testing for Systemic Sclerosis – A Helpful Guide for Patients – 2021 
Ed Harris: Scleroderma Education Project

Scleroderma and Dentistry (and Dr. Luis personal journey living with scleroderma) 
Dr. Luis Del Castillo

Sjogren’s Syndrome in Scleroderma-2018 
Dr. Philip Clements

Pain in Scleroderma: Recognizing Its Causes and What Can be Done About It -2018 
Dr. Daniel Furst

Living With Scleroderma: How you can help your dentist help you-2016 
Dr. Dan Sizemore

Therapies, Procedures, and Treatments in Scleroderma

Benefits of Myofascial Release & Pilates Techniques for People Living with Scleroderma- 2021
Physical Therapist Sara Jacobs and Dr. Susan Nynazi

Stem Cell Transplant in Scleroderma-2018 
Dr. Suzanne Kafaja

Nutritional Tips and Strategies to Help Bypass Scleroderma Problems – 2021
Dr. Susan Nyanzi

Therapeutic Plasma Exchange for Systemic Sclerosis: A Guide for Clinicians-2021 
Ed Harris: Scleroderma Education Project

Wellness/Emotional Health

Behind Every Dark Cloud is HOPE! -2021
Andrew Botieri

Navigating the Rough Waters of Today: families can be strong vessels! 2020
Elaine Furst RN

Learn to Laugh at What Scares You – ARMC Patient Education Day – 2017
Karen Vazquez

Caregiving During Challenging Times- 2021
Ginny Maril Ph.D.

Caregiver Panel – Caring for a Loved One with Scleroderma – ARMC Patient Education Day- 2018
Panel: Pat Guerre, Chris Hulstrom and Pat Major

Scleroderma: Keeping a Healthy Mind – ARMC Patient Education Day -2016
Ginny Maril Ph.D.

Happy in the Now; Living Well in Difficult Times – 2020
Dr. Kathy Gruver

Caregiver Panel – Caring for a Loved One with Scleroderma – UCSD Patient Education Day -2018
Panel: Emmanuel Munda, Martha Soto and Scott Noel

Disability

Documenting Disability: Navigating the Social Security and Supplemental Security Income Claims Process -2020
Speaker: Megan DiTolla, California Licensed Attorney

Clinical Trials

Clinical Trials—They Never Actually Fail – 2020
Daniel E. Furst MD

The Latest Updates in Scleroderma Clinical Trials – 2018
Dr. Jonathan Mills

The Upside and Downside of Participating in a Clinical Trial – 2017
Elaine Furst

Patient/Family Assistance

NeedyMeds: Help with Healthcare Expenses for the Scleroderma Community -2022 
Carla Dellaporta, Director of User Engagement, highlights the educational and healthcare savings resources NeedyMeds offers, especially for those living with or caring for someone living with Scleroderma.

Scleroderma and Covid-19

Scleroderma and Covid-19, New Variant(s) and what you now need to know – 2022
Dr. Daniel Furst

COVID-19: Ever changing: treatments, vaccinations and telemedicine – 2020
Dr. Daniel Furst

Covid-19 Vaccines, New Variants and Research Findings – Mid 2021
Dr. Daniel Furst

COVID-19 Testing & Vaccination – Early 2021
Dr. Daniel Furst

Patient Advocacy

The Challenges Scleroderma Patients Face When Admitted to the Hospital – 2020
Dr. Susan Nyanzi

The Importance of a Patient
Advocate – 2018

Sandy Thigpen

Speakers and Topics

Couples Interviews

Topic: The Third Wheel In Your Relationship (includes interviews from couples living with scleroderma) 
Elaine Furst

Group of six persons in circle. holding hands.The summit workers are meeting in the same power room.

For more information on support group resources, please visit our support group page.