Join our supportive community where you can share experiences, gain valuable insights, and find inspiration among peers facing similar challenges with scleroderma. Our volunteer-led groups offer practical tips, resources, and a sense of camaraderie to help you navigate your journey with renewed optimism. If you are interested in joining or leading a support group, reach out to info@sclerodermadmv.org.
Meets monthly on the 3rd Wednesday at 7:00 p.m. ET.
Hosted by Maria Dastur. All are welcome! Email info@sclerodermadmv.org to receive the Zoom meeting information.
Meets monthly on the 2nd Sunday at 7:00 p.m. ET.
Calling all creative souls (and creative wannabes)! Whether you’re a master of macramé, a painter extraordinaire, a scrapbook savant, or someone who just likes to glue things together and call it “art,” this is the group for you! Let’s laugh, connect, and create something beautiful together—no pressure to be perfect, just bring your passion and your favorite snack (crafting takes energy, after all).
Join us and make something fun—connections included!
Hosted by: Elizabeth Theisen
All are welcome! Email info@sclerodermadmv.org to receive the Zoom meeting information.
Our Partner Organizations also offer a variety of support groups each month! Check out Spanish Speakers, Parents of Kids and Teens, Young Adult, Get Moving with Scleroderma, and Scleroderma and the Lungs.
As we work to reunite and rebuild our scleroderma community we would like to hear from you. How can we best support you? What programs and events would you like to see? Would you like to volunteer or do you know someone who would?